Thursday, December 26, 2013

December 26, 2013

I am straight up spoiling you readers. Three posts in three days? Who is this guy? What has he done with Nick?

Figured I'd get the news out there before it starts circulating otherwise. Scans came back with new developments, which I expected and I think most should've expected. There was the camp praying for the Christmas miracle but realism takes over at a certain point in my mind and you have to realize the nature of the disease at hand. I have bony metastases in four locations: my once mighty right arm near the shoulder (you're right I guess it's still quite mighty), my left hip, one vertebra in the lumbar region (L2), and the most concerning is in one vertebra at the top of the spine in my neck. The reason the vertebra at the top of the spine is most concerning is due to its proximity to the spinal cord, which it is not yet endangering - but if untreated could potentially paralyze me.

Interestingly enough, during my time in Mexico and even after, I have felt twinges of discomfort in all of the spots mentioned that lit up on the PET scan. Even more interestingly, all of these spots' discomforts have gotten less painful/uncomfortable directly after a Coley's treatment. The only one of these spots that I currently have any discomfort in is my arm, which started acting up yesterday - I'l be interested to see how it feels after Coley's tonight.

The reason that I don't find these scans all that negative is because my last set of scans was on October 3rd. Since then, I have had one chemotherapy (in Mexico), and that was in late November or early December. That being said, I went for about 2 whole months without chemotherapy and now only have four spots. Who knows what it was like before I started Coley's, after my big reaction/border crossing adventure, or during the rest of my treatment down there. I think it would obviously be beneficial to get some more chemo under my belt down there, but let's see if it makes sense to radiate this little bugger in my neck before that becomes a nuisance to the rest of things, shall we?

Merry Day After Christmas everyone!! Until the next update...

Wednesday, December 25, 2013

December 25, 2013






It's Christmas in New York again everyone! Merry Christmas from the Modico Compound to you and yours, wherever you may be!





And of course, for your listening pleasure...

Tuesday, December 24, 2013

December 24, 2013

Woof, haven't blogged in a week. Who writes a blog about his life with cancer and goes AWOL for a week?? Just keeping you on your toes people. Don't want you getting too comfortable in your computer chairs/desk chairs/couches/train seats(...this one was for you Janelle, because no one on God's green Earth gets comfortable in Metro North seats) while reading about my ventures south of the border.

Why no blog in a week? Well to be completely honest I've been mostly out and about, keeping busy and seeing the friends and family that I've kept in touch with and kept in touch with me while I was essentially practicing my Spanish and acting as a human pin cushion down there. Great times had by all, really. Also, given I was down there for five weeks, that means five weeks of no driving - perhaps my favorite activity as you well know. Needless to say I've been all over and back in this past week - and yes, it's officially pothole avoidance season.

Scans, scans, scans. Yeah yeah I'm sure you're all clamoring to know what they looked like on Friday. Hate to break it to you folks, but I'm not. Dooooooon't care. I told the docs down at Sloany Ketts to save any results until December 26th. Not about to have this all be the topic of conversation on Christmas. Plus, as far as my new treatment is concerned, this is a baseline scan to see what we're dealing with, not how it's going. If I could sum up how anxious I am about these scans, this is how I'd go about it: as they rolled me into the PET scan, you could see the machine start up and read "30:00" for thirty minutes to go. That's the last thing I remember until getting woken up by the technician saying, "Yo dude you're all done." Legitimately passed out so hard. Dooooooon't care.

What else is new in the life? Nada. Just living the dream here folks, the #ChemoDream. Hope you all have a wonderful holiday - to those who celebrate, Merry Christmas. Enjoy it!!

Tuesday, December 17, 2013

December 17, 2013

So awkward signing in to Google in English. I'm all about google.mx nowadays.

He's back. Yes indeed after a decently arduous five week treatment, I'm back at the compound - and it feels so right. Please excuse my lack of blog post immediately after landing; if I could've I would've. Of course, I hit the ground running. Gotta get my Christmas shopping done, yanno?

Got my white blood cell booster shot last night. For whatever reason I've been getting really nice reactions from it - not super white blood cell numbers but fevers! Cranked out a 101.6 last night, just moving those fighter cells around like it's nobody's business. On Friday we'll find out how the platelets are looking, among other things. Although we won't find out exactly how they look that very day, scans are on Friday. Again, these are more of a baseline to see what we're dealing with - so not much ado about these results.

Another quick thing - as a result of this new treatment, I'm on a completely new diet. It's known as the Gerson diet, which has me nearly vegetarian, juicing, and consuming incredibly small amounts of sodium (salt) and sugar. The family is going to try to adhere to this diet, albeit a little more loosely, in order to make it a bit easier for me to assimilate. True solidarity. That being said, as much as we appreciate it always, PLEASE do not send any food to the house as it will just go to waste or force us to find others to pass it off to! The generosity shown by others throughout this entire experience has always been unreal and like I said we really do appreciate it!

If you wish to see me, good chance you'll see me around trying to find places I can potentially eat at...kinda like a mini-scavenger hunt of sorts if you're bored. Later everyone.

Friday, December 13, 2013

December 13, 2013

Friday the 13th, and I haven't blogged in a while. I owe you guys one.

What's new with Nicky Mo? Lots to update since the last blog, so let's get started! The platelets were a paltry 67 on Monday. I was encouraged by this because they had gone up slightly (I think from 63) after I had weaned off steroids which were intended to help the platelet number go up. Couple that with starting up this platelet stimulator, and the number should go up, no? Well that was the plan. And all I do is execute plans with terrifying efficiency woooooooooooo. You thought I was about to drop some depressing nonsense on you but nopeeeeee; on Thursday morning, my platelets were 101, a 50% increase in merely 3 full days. Still a ways to go to be able to do chemo, but at least my bone marrow isn't totally fried yet.

Now everyone is probably wondering if I'm getting the reactions that we're all looking for with this treatment. For whatever reason, I haven't been getting the violent shaking, chills, and overly high fever (104ish). However, I have been getting delayed reactions...I'll be fine for like 4-6 hours and then I'll just start crushing a low grade fever, anywhere from 99-101 degrees. The whole point of the shot is to trigger the immune system into action, as evidenced by the fever...so the fact that I'm getting the fever eventually means the immune system is kicking into gear and doing its thing. In essence, somehow my body has found the "Goldilocks zone" of this treatment, so far: I don't get the violent reaction that is seemingly common, but I don't get zero reaction at all - it's a nice little spot in between.

Of course the weather is getting ridiculously nice out here as we're wrapping up this trip...first day at home and the high here is supposed to be 80. Of course. Wouldn't have it any other way though. Gimme that 20 degrees and face frozen off in 2 minutes...that's home. Later everyone.


Monday, December 9, 2013

December 9, 2013

Time for an update.

Platelets...no bueno. Just not cooperating. Just not being cool guys. Am I mad at them? Nah. Maybe just a bit disappointed. Sometimes you gotta play the guilt card with these platelet guys. Make 'em feel bad about their relative lack of effort. Letting the rest of the team down with their 50% hustle of sorts.

So what are we gonna do here? Well for one, start up a drug for some platelet stimulation (did on Saturday). Two, get off these steroids which are making me have a suppressed reaction from the Coley's. Looking to get that full shakes and fever woohoo! Three, see how one and two go. Viva!

What else is there to say about this Giants team? Time to lose out to get better draft picks, boys. Need to get that O-Line back in shape, pick up a wideout for when Nicks jumps ship, and look towards next year. Maybe it's time for Coughlin to hang 'em up. Definitely time for Fewell to hang 'em up. Later GMen; it was a really disheartening season.

It's about time to get home for the holidays. I'll be doing my best to make that happen in a timely fashion! Until next time, world.

Thursday, December 5, 2013

December 5, 2013

Early morning, December five...I woke up! I'm still aliiiiive. (This was set to the tune of "Pride (In the Name of Love) by U2 re: MLK...if you didn't know, now you do. You're soooo welcome.)

A very docile couple of days here at clinic, just making our way through treatment. Platelets don't want to cooperate, so we're still bumping those up, and we'll see if chemo is possible tomorrow or Saturday...but most likely won't happen until next week if you ask me. And I'm practically a licensed doctor now sooooo take it to the bank, baby.

What else is new? Nothing. As long as I reach my tamale quota for the day, coupled with some coffee and watching my San Diego weather ladies...for the forecasts, I'm a very happy camper. No doubt about it. Unbelievably, the high temperatures for New York and San Diego are the same today. On December 5th. New York. San Diego. How.

Also it appears they lit the tree in Rockefeller Center last night. Lost on me at this point. Certainly doesn't feel like the holidays here so I really can't get into it. Gonna be a highly condensed holiday season when I get back, but at least I'm getting that. Can't wait. Yet another thing to look forward to, like the flight home.

Until next update...later everyone.

Monday, December 2, 2013

December 2, 2013

Nicky Mo, so hot right now. Nicky Mo.

Boys and girls, it finally happened. On Saturday, I cranked out the elusive fever we've all been looking for. That's right I did it. Act like you're shocked, I dare you.

That's part of the news fit to print. The other part of the news fit to print is that my blood numbers are too low for chemo this week; the numbers required to do chemo here are different than at Sloan. And get this...they're more conservative here. So back home, at good old Sloany Ketts (who I'm losing faith in by the minute), they'd be like yeah man let's go crank out some chemo it'll be fun!! Yet here they're more along the lines of "no way dude let's get your blood numbers better and help your body fight the disease". Weird...what a novel idea.

So I get hit up with the shot that produces a fever again tomorrow. Obviously having a fever isn't fun but hey if it's doing the job activating the immune system against these cells...do you think I care? Let's do it up.

Diet update: it's going okay. I've adopted the juicing well and am limiting the non-naturally occurring sugars and salts pretty well. It's a decent existence that I foresee lasting 13 of 14 days. Cheat day once ever two weeks. Love it. Need it. Gotta have it.

Viva Mexico. Until later folks.

Friday, November 29, 2013

November 29, 2013

Time to write a power blog. I'm feeling it. Power blog city, population Nicky Mo.





Gotta start it off with a power picture no? Um, of course. This picture right here is slightly over two weeks old...location: US-Mexico border. Let's use this picture as a springboard towards confirming and dispelling some thoughts and rumors.

First: did I request to have my picture taken while transferring ambulances? CONFIRMED. There are certain times where you just know like dang dude I gotta be looking good right now. Quick, someone get a snap of this. Boom.

Second: is that a genuine smile? CONFIRMED. Though let's be real, at this point it was nearly 80 in the sun, I was rocking a nice fever, and my blood pressure was most likely in the 70/40 or 80/50 realm. They say I was very much aware of my surroundings, and though I was (only answered mom's birth year wrong...yeah I made her older, no regrets. Handle it Bigfoot), I was still in pretty rough shape. But let me ask you this: if you were (supposedly) stable but not getting too much better, how would you feel about bouncing across the border to a nice, big university hospital in the United States? Thought so.

Third: a while ago a friend on Facebook posted the status "the closer to death you are, the more alive you feel." DISPELLED. Literally no chance. This could not be more wrong if anyone tried. Take it from a guy who has been there not once, but twice. And if you need a near death experience to either A) feel alive or B) change your ways, you're doing it wrong. Big time.

That was a nice little segment, no? Great. Now on to Thanksgiving. We did in fact celebrate a little Thanksgiving here, and it was excellent. A little bird action, mashed potatoes, vegetables, stuffing, the works. First day in over a week and a half without a tamale...mixed feelings.

To all those who sent letters recently, you know who you are - here's a blog shout out. Thank you for taking the time out of your day to drop me a note. It was both unexpected and so much appreciated. The love and support goes a long way to getting us through the tough times and making strides toward the better times. We're getting there, together. Here's to a great holiday season.

Viva Mexico. Until later everyone.

***Update: I just wrote that blog post with a blood sugar of 46. If it makes no sense........sorry, still no regrets.

Thursday, November 28, 2013

Tuesday, November 26, 2013

November 26, 2013

He lives.

So today was a big day. We did the immunotherapy at a very low dose via a shot to see if it could be tolerated (unlike getting it through the mediport which we think helped lead to the big episode) and it was. This is great news.

As a result, treatment can be continued and we can keep bumping up the dosage until we get the desired effect: the fever that lets us know we're stimulating the immune system response. The second piece of this was regenerating platelets to a level high enough to administer low-dose chemotherapy, which it appears we have.

Let's recap the 3 step plan: 1) boost the immune system - accomplished via shot on Monday. 2) trigger immune response - accomplished today via shot and slight reaction. 3) damage the malignant cells still lurking in the body - to be accomplished tomorrow via low-dose directed chemotherapy. Repetition of these three steps ensues to bury the disease and train the immune system to recognize the malignant cells as such. Set go.

The only bad news is about the Giants. And, well, is it really bad news? Really can't be dealing with their schtick for the rest of the year. They're just awful. Chalk this season up to a lost cause, I say. Terrible.

I'll try to update more often as we go along, but treatment should get tougher so we'll see how it goes. Until next time...#Andre44Heisman (let's go BC Eagles wooooooooo).

Friday, November 22, 2013

November 22, 2013

Sorry for the lack of updates everyone. No longer can we assume no news is good news given my most recent episode of border-hopping sepsis which was altogether joyous, believe me.

However, currently no news is good news. This has been a good recovery week from that whole extremely low blood pressure scene. Looking back on what happened, it seems that my system conducted a super purge of whatever was inside it - dead cells from radiation, platelets, the works. As I bounce back, I hope it to be stronger and ready to go for next week when I take on the full spectrum of treatment.

To be perfectly honest, I'm not sure that if I was in a poorer, more desperate physical state that I would've made it through the previous episode. The decision to come down here at this time may prove vital to success, which of course I plan on attaining. After this week of getting pumped up with vitamins and minerals, I'll get the immune system booster Monday, immuno kickstarter Tuesday, and low dose chemo to wound any underlying disease I have Wednesday. That's what I've got for now...looking to make good on it and carry it all out.

I'd be remiss if I didn't mention JFK today, namesake of my high school and American legend. Though I of course was not around for that day I can't help but draw the comparison to it being my parents' generation's version of my 9/11. You know exactly where you were when you heard what happened and it sticks with you to this day. I don't even remember what day is as diagnosed with this disease yet stuff like that, the shock and the tragedy, makes a dent on us. Powerful stuff.

Also on that note, I think it's been almost barely over one year since my diagnosis. Feels like shorter, no? A trying year without doubt...but hey look where we are now. Nicky Mo is a television star/globe trotting gallivanter, and you're reading his blog, so you must be doing something right.

Until the next update........go GMen. Later everyone.

Sunday, November 17, 2013

November 17, 2013

Alright let's get the gory details out of the way...because I know you all want to hear them. So juicy.

Let's review the quick hits I gave you last blog: Monday was no big deal because I just got vitamins and a shot to boost the white blood cell count and get the immune system up and running for the upcoming hit it would take, starting Tuesday. Tuesday I rolled into the clinic, knowing it would be a tough day. About 9 AM local time, I got the shot of the stuff right into the port.

Here's what we know will happen: the shot will first cause tremors, maybe a half hour after injection, then uncontrollable shaking, tapering after about a half hour, at which point the fever will take hold. The fever will last until about 2 o'clock and then you'll cool off and heat up a bit (aftershocks, if you will) well into the night. Blood pressure is expected to drop as the body fights the "infection", the dead bacteria that is injected to produce these reactions. The reaction (ramping up the immune system into action to fight all kinds of cells and most importantly the cancer cells) is what we need.

Here's what happened: tremors started 10 minutes after the shot, followed by uncontrollable shaking for a solid half hour. After that I was shot. Nausea, vomiting, no speaking, just bundled up in a ball. My blood pressure is low to begin with, and so clearly it didn't appreciate the extra hit down. I started to feel warm, looked outside, and saw white. That's it. Next thing I know, I'm coming out of it, with cold compresses on my head and stomach, still light-headed and somewhat confused. I'm told I hallucinated during the episode, which is cool I guess.

The decision was made to go to the hospital in Tijuana. Think back to the scene from The Godfather where Vito Corleone is in the hospital after getting shot while picking up oranges...just like that. No real machines, nothing. After spending, or should I say surviving, a night there, my blood pressure was still floundering after having cruised down to 60/30 at the clinic. I made the decision to bounce back across the border to recoup; I'm glad I did. We switched drugs to bump up blood pressure and regulate heart rate, which was high, and I made a comeback. Finally feeling just about normal today, and you know what that means.............I'm heading back tomorrow.

We'll make tweaks: less dosage, and not through the port. No need to send the body into shock again. All we need to do is illicit a bit of the response I got on Tuesday, not nearly the whole thing. So let's go ahead and do that. No more near death experiences would be coolish. Hope the next update is just as spectacular and not nearly as long - just wanted to take you all through the ride that was this past week.

To an uneventful week #2!

Thursday, November 14, 2013

November 14, 2013

So maybe I should've been a bit concerned about the medical aspect of things.

The first day went well, mainly because all I got was some vitamins and a little insulin guided therapy. The second day was a whole different story...whiting out, hallucinating, cranking out yet another 105 fever - the works. Spending a night in a Mexican hospital? Priceless! So severe sepsis or tumor lysis syndrome seems to be the case. Either way, the drugs were too much, too fast. Nothing like almost dying in Tijuana, just a great story.

Where does this leave me? Well currently in the ICU at UCSD Medical Center. Yeah I came back to the states because that was my go to move. Can't go for that, no can do. The treatment is so promising I have to give it another go, just don't know when. As much as I'd love to jump right back in, I know I've been brought a whole lot (my blood pressure has finally stabilized without meds), so I think I'll take some time off in (RAINY?) San Diego until Monday. Give it one more go next week, with a few tweaks, and hopefully we will be able to continue on this treatment. Get rid of this disease.

Until the next update world.

Friday, November 8, 2013

November 8, 2013

And the blog is about to get oh so spicy again.

It's official, heading to Mexico to try a little something something instead of just deteriorating here like the Sloan people recommend I do. (Harsh way to put it, but sometimes the truth is brutal.) By the way, see what I did there? Spicy? Can't stop, won't stop.

I'm beginning to have serious concerns about this new treatment, I will not lie. Of course, my concerns are 0% of the medical variety, 100% of the nonsensical variety. How strong will my wifi signal be? Will there be any good Chinese food? Should I grow out the mustache a bit more to fit in a little better? Should I just drink the water and get it over with, because, comparatively speaking, is Montezuma's Revenge really that bad? The answers so far are poor, of course not, of course yes (it's "no shave November" anyway, clown question bro), and probably not.

Bright side: Sunny and 80 on the 10 day outlook. You know it. Somebody's gonna be playing Kan Jam on the beach with his newwww friends! Wait, what treatment?

Look I know what you're all thinking. Of course you all want to be me! Sorry, though. No can do. Stud City, population Nicky Mo.

Updates from south of the border to commence Lunes. Get crackin' on that espanol people. (I said Monday.) Later everyone; wish me luck.


Sunday, November 3, 2013

November 4, 2013

Greetings, salutations.

A quick follow up on the previous Keeneland story, which of course is a story for the ages: video of the interview can be found here. A quality piece of art if I may say so myself.

In other awesome news, Kennedy Catholic retired the ol' 37 for me. A true honor from the alma mater, a gesture that I won't soon forget. Pictures from the ceremony are on the Kennedy Catholic Facebook page. I dressed up, dapper as always, and gave a little speech to round out the affair.

Now on to the fun stuff. What's my deal? Like there's no way he's just sitting around letting this disease get the best of him, right? Of course he's not. Literally running around all day and night. I'd be lying if I said I had never considered running the NYC marathon yesterday bandit style just to stick it to the man. The whole bones most likely disintegrating thing held me back...weak excuse I know. Mentally I'm as carefree as ever, which is somewhat dangerous...but perfect for this situation so that's good.

Medically...oh medically. Well, as it stands medically I'm a nightmare. But nightmares are okay because eventually you wake up and it's all back to normal, right? Right. So let's hop on that train, why not? Radiation is over. Dunzo with that. Next step is to find the next step. Right now I'm leaning towards experimental treatment in Mexico. Clinical trials are few and far between, you have to thread the eye of like 7 consecutive needles to qualify for one, and I'm really not feeling most of their protocols (i.e. toxicity levels). Therefore, why not get crafty? It's like Mike Mussina at the very end of his career - you don't need to throw 95+ MPH to get 'em out...there's always another way. Pick your spots wisely and you will be rewarded.

Let's pick a good spot and get rewarded. Later everyone.

Saturday, October 26, 2013

October 27, 2013

Alright so because it's such a sick story I've got to dedicate nearly an entire blog to it: Keeneland was awesome, and I can still destroy a suit.



As I mentioned in the last blog, if you timed it right you caught me on TVG thanks to Gino Buccola, a lymphoma survivor and now on-air personality for the horse racing-centric television channel. Great dude, owe him for hooking me up with that spot. So as it goes, he tipped me off the night before that I'd give my pick for Keeneland's 8th race and if I gave him the info on my pick early enough, maybe they'd be able to throw together a graphic. Of course I made that happen.
I did my due diligence, and my pick for the 8th race was this quality filly Hot Tempo. Caleb, who interviewed me, asked me who I liked, to which I responded Hot Tempo while this graphic was supposedly shown, and what other horses I liked in the race, to which I responded the 2, 6, and 8 - to use in exactas (one of those horses finishing second to my top pick, the 7 - Hot Tempo). Was there ever any doubt this was going to happen? And boom goes the dynamite.

And so goes the story of Nicky Mo straight up handing money out to those who would be kind enough to lend an ear to him on TVG on a quiet Thursday afternoon. As I told Bigfoot: veni, vidi, vici, Keeneland. The legend grows.

On a more lame note, for those who are still interested, I started radiation on Friday. I'll get zapped up again Monday and Wednesday. In other news, so far, so good. You're only as sick as you mentally allow yourself to be. Who wants to run a marathon with me tomorrow?

Later everyone.


Wednesday, October 23, 2013

October 23, 2013

So nowadays it looks like we might have to start playing the "Where in the World is Nicky Mo" game...mwahaha.

Much to update the world on, some new activities to detail; let's dive right in.

First, it appears I've been given the tremendous honor of having my number 37 retired at Kennedy Catholic High School. Although I informally retired said number when I quite literally stole the jerseys from the backseat of Coach Fletcher's car, the official nature of this is far more comforting. Of course I feel tons of pride in this and am quite excited to see a good number of my former teammates at the retirement ceremony.

Next, I was unbelievably fortunate enough to play a round of golf at Shinnecock Hills last week. I can't even describe how awesome it was, but I'll try. Luckily (or unluckily to some), we caught a true Long Island day: windy and overcast. Once that ball gets up in the air...good luck. However, like I said, I feel luckily to have experienced it in such a fashion - feels like my own US Open of sorts. The club itself is simple, refined, and focused on golf. It's not a country club, isn't flashy, and is clearly steeped in history. One could definitely see why it's one of the toughest places to play in the world, why it's so impossible to gain membership, and why the members love their club - it's everything a golfophile could ever desire.

After a great weekend catching up with high school buddies and college friends, I played a quick round over at Pound Ridge Golf Club, where I think I may no longer be welcomed. When an employee asked me, "Tough course, huh?" I responded, "Nah." I then explained to him that I just played Shinnecock so comparatively speaking it wasn't nearly as difficult - hope I didn't offend him and his course because it was nice and I'd definitely go back.

Now where is Nicky Mo? Well he's in Kentucky, at historic Keeneland Race Course. About time, you say, the horse racing kid makes it to the horse capital of the world. Feels right. I'll toss up some pictures of all these travels in my next blog, hopefully with pockets overflowing of cash from my winnings here. Also, I might just be on TVG tomorrow during the second half of Keeneland's card (somewhere after 2:30-3 I'd guess, if it occurs). If you're around and bored, see if your TV provider carries the channel, flip it on, and say a prayer that I don't sound like an idiot on national TV.

I'm ready for my close-up. No really, my hair's like kinda thick and the best looking it's been since I lost it all, so I'm quite ready. Catch ya later everyone.

Thursday, October 17, 2013

October 17, 2013

I think we're just about hitting peak foliage here folks. Northeast in the fall...great stuff. How's life? Fantastic. Just cruising around right now with some time off before radiation treatments begin.

Speaking of, we're going to do a little tinkering with this round of radiation: crank up the dosage and have extreme accuracy in slaying this activity that has arisen in the L4 vertebrae. It's actually pretty interesting - since we already have to be overly careful not to double treat the spot that's already gotten radiation, the accuracy of the treatment is so pinpoint that we might as well just use more radiation and a smaller number of treatments to achieve the same overall desired effect. Great strategy. Saves me oh so valuable time. The goal of this will be, like I said, to halt the progression of whatever is going on in that bone and ultimately try to give me some more pain-free time. Needless to say, I dig that.

Since it's such an intricate process to plan, treatment won't start until the 28th. I can also dig that. Feeling good, with no commitments, I'm getting ready to do some things. Golf is a must, of course...so I'll let you know where I take my hacking skills next. Betting the ponies is a must...so I'll let you know where my degeneracy takes me next. Otherwise, relaxing with friends and family...the simple life.

Hope everyone out there is moving right along. Enjoy the weather while it lasts!

Monday, October 14, 2013

October 14, 2013

Hey everyone, just a quick blog to provide a little update.

Great weekend hangin' with the boys of 30 Mod in New York City along with a select few others. Always a good time - you're only a champion if you surround yourself with champions; a team is only as strong as it's weakest link and the same goes for groups of friends. Couldn't ask for a better group.

Heading down for radiation simulation today, should be a quick hit at Sloany Ketts. I'll provide some more detail when I find out info today.

Keep on keepin' on everyone.

PS - how nice was it not to have to deal with the Giants this weekend???? Okay later.

Thursday, October 10, 2013

October 11, 2013

Salutations out there!

Yesterday was some day (and by yesterday I mean like 20 minutes ago). Old Man Wrinkles and I cruised over to the memorial golf tournament held for Mike Martirano, one of Wrinkles' best friends who passed in 2009 from ALS. It was a beautiful outing remembering an excellent human at a gorgeous course in Connecticut. Naturally I crushed the competition...don't let anyone tell you otherwise.

Now some of you might be wondering how we're doing, and the answer is we're doing okay. Hanging in there, can't complain, won't complain - as I've said throughout. We keep on keepin' on. Life's a garden...dig it. Yeah I just quoted Joe Dirt. Fantastic move. Fantastic.

To all those who have reached out, and even those who haven't for whatever reason but have seen the blog and thought of us, thank you so much. It really means a lot, and I wish that wasn't such a standard response but I (yes, me, Nick Modico, Nicky Mo, etc.) am at a loss for words to describe it otherwise. You're all amazing. Please bear with me as I try to respond to all messages!

Got a great weekend lined up: gonna see a whole bunch of my buddies from school along with some family and friends from around here and just enjoy myself and the fact that I don't have to watch the Giants blow it again on Sunday (nice to get that out of the way early, actually). I'll leave you all with a little tune that I always used to like to play as fall really started to set in (so like now). Be good everyone.

Tuesday, October 8, 2013

October 8, 2013

Hello world.

Well it was a great weekend. Highly enjoyable time of relief, relaxation, and enjoying time with family and friends. Alas, what a difference there is between "preliminary" and "final". Unfortunately, cancer is back - in one of my vertebrae and in two little spots on my pelvis.

Now I know some of you may think highly of me and say that this is just another hurdle to jump, and I commend that optimism. The first step will be to radiate this spot on the vertebrae that's arisen with activity to stop its spread. There are clinical trials of other protocols to try to subdue the progression of disease, which we'll of course consider. The fact of the matter is this: the disease returned while I was undergoing chemotherapy that is known to quell Ewing's Sarcoma, which is awfully bad news. As my doctor put it, we have to be realistic with our goals for me - the disease was very, very advanced when we finally got it diagnosed, we knew high dose chemo could get me into remission but we didn't know for how long (the hope was that it would be in remission for good). That being said, the true goal is to try to give me good time for as long as possible.

I am unsure how much time that leaves me with, and it'd be unfair to ask the doctor to venture a guess so I didn't ask today. I'll have scans again after radiation; they'll be either when I start experiencing pain elsewhere or 4-6 weeks after radiation concludes, whichever comes first. How far the disease has progressed at that point will give us a better indication as to how much time there is to be had. The unfortunate truth is this: a relapse of Ewing's Sarcoma is 100% fatal, and I am now terminal.

This leaves the status of the blog up in the air. Though I do enjoy producing it, I know that there will be a point coming up where there will be no more to report - I'm not sure if this will be before I'm too weak to write or not. I also don't want this to become "The Blog of the Dying Man" because that just stinks and sounds so depressing. As you all have known from my past blog posts, I'm neither depressing nor stinky. Also, above all other things I want to be remembered as a guy who was always happy. Always. Which unbelievably, after all this news today and suffering for the past nearly 20 months, I still am. We'll see how things go, and if I do choose to conclude the blog I'll procure a final post, not just cut it off...so you'll all know.

Am I realistic about my prognosis? Sure am. Have I stopped fighting? Sure haven't. Do I believe in miracles? Sure do. Let's pray for one.

Take care everybody.

Saturday, October 5, 2013

October 5, 2013

Another off week in the books, except this was no usual off week.

I had mentioned a bit of anxiety about the recent scans, and much to my delight (and maybe some others...) they have preliminarily come back good. Final reports to come in the near future, but due to the heightened sense of concern for these scans, a couple of good nurses and doctors took a sneak peek at the scans themselves and gave me a bit of relief. why the heightened concern? Well, for the first time since diagnosis and the start of treatment, the pain that sent me searching for answers as to what was wrong in the first place was back (not nearly as bad, but eerily reminiscent). Of course I thought the worst and figured disease was back, but luckily so far that is not the case.

What could the pain possibly be? Who knows. I had nerve damage that I just assumed would never recover, so maybe they are recovering and now I can feel my pulverized from chemo/radiation/dead tumor bones? Whatever it is...don't care - as long as it's not disease coming back.

Now as a result of this being a not-so-off week, I've requested next week off as well. Gotta relax a little, get back on the links for a few rounds, and take in the beautiful autumn weather and foliage (aka landscaping at the Compound).

Giants are going 12-0 from this point out. You heard it here first, folks. No I'm not tripping on painkillers. Maybe I'm just tripping, though. Later everyone.

Sunday, September 29, 2013

September 29, 2013

Greetings everyone.

Made it through cycle 7 this week and beginning the recovery. It was an interestingly long feeling chemo week, probably because of this absurdly nice weather just staring me down the entire time. Nevertheless, here we are, moving forward. Luckily, the weather pattern we've had looks like it'll be holding up for a while. You know I'll be on the links.

Let's just not talk about football.

The latest household project to be undertaken is painting. You don't truly realize how dirty a house can get until you power wash the siding...totally gross. The decision was also made to change up the colors a bit, so we'll see how it all plays out. So far it looks pretty good.

And so the anxiety begins to build with scans looming on Thursday. Though I've openly stated I don't really get anxiety about these things, this time around it's starting to hit me a bit. Maybe because time seems to be moving so quickly; it's already been 3 months since the last scans...unbelievable. Praying as always that things are lookin' as good as my fresh dirty blonde hair on those scans.


Until later people. (Let's go Giants ugh there I said it...the pain. The torture. The cruelty.)

Monday, September 23, 2013

September 23, 2013

Couldn't have been more right about the Giants, could I have? How gross? Bottom line sad truth: closer to vomiting from that performance than from any chemotherapy treatment. You've actually got to be kidding me.

Thank the sweet Lord for fantasy football because otherwise Sundays would be unbearable (this is of course assuming you don't have any members of the Giants on your fantasy football squad, which I, because I trust any member of the team you may name negative 10%, do not).  Meanwhile in reality world, golf finished up in a relatively lackluster fashion with Stenson running away with this weekend's tournament. Still amazes me to see these guys hit these shots, just awesome.

Into the week 2 abyss we roll. Really not an abyss at this point, considering we know exactly how this is going to play out. The great part about going into Sloan today and getting all my blood counts checked out was asking what the ANC (absolute neutrophil count) number was and getting the number "1.9" as a response. Let's dissect this: I could not get chemo two weeks ago because the count was 1.0. I was given the green light to get chemo last week because the count was a robust 1.1. AFTER a week of chemo...the count was 1.9. And I thought I had a sense of humor...my bone marrow is even funnier. My humerus is of course the most humorous. Gross, can't believe I just did that.

In other news, if you haven't been reading the comments to the blog (which I of course do, love hearing from you all when you can), Mrs. V is hanging up the cleats after 35 years on the ballfield. Of course this immediately brings two things to every reader's mind: 1) WOW. 35 years teaching - unreal commitment from and unreal person. 2) WOW. Nick's blog is quite possibly the best breaking news source out there. In all seriousness, from a former student on behalf of league of former students, thank you Mrs. V for your years of dedication, compassion, and friendship, and good luck with your future endeavors! (Nick's blog is currently not hiring...will gladly write recommendations, though.)

Enjoy what looks like some weather week out there folks. Later all.

Thursday, September 19, 2013

September 19, 2013

He's back, and back on the juice. Day 4 of chemo round numero 7. Feeling the effects of course, and not particularly enjoying such - nevertheless we power on. The counts didn't bounce back as strongly as I thought they might following an extra week off, but apparently it was still good enough to start treatment. And so, here we are, cheeming out again.

How did my last off week end up? After learning I'd be receiving that second week off I set out to play just about as much golf as possible, raking in 99 holes for the week (or 8 days, Sunday-Sunday). The weather is perfect for it and I was full of energy so I simply did what had to be done. Felt right.

Things that are not making this any easier: 1) The New York Giants. What a farcical showing it has been thus far. 2) Pumpkin Spice Lattes. Can't have them during chemo weeks due to high acidity...but they're so good. Judge away. 3) This weather. Unbelievably nice week and of course I'm stuck inside feeling like, well, a chemo patient. Cruel and unusual punishment, indeed.

Things to look forward to: 1) The next off-week(s). Always. 2) The New York Rangers. Sorta...this one could get ugly fast. 3) Today starts the TOUR Championship...a little golf to watch and nod off to certainly helps during chemo weeks.

Almost time to get those Halloween decorations out. Great time of the year. Enjoy everybody.

Wednesday, September 11, 2013

September 11, 2013

Every year this day rolls around and sparks all kinds of emotions: anger, sadness, confusion, and even pain. Yet despite their intentions, look where America still happens to be: on top. Why? Because our ancestors earned it and we've maintained it; nothing can stop this nation. We continue to defend our rights to life, liberty, and the pursuit of happiness and this, along with the days that others tried to take these rights, we shall never forget.

Tuesday, September 10, 2013

September 10, 2013

Greetings, world.

He's back, and better than ever. Well I guess that depends on who you're asking; you ask me and yeah man I'm doing superb. Feeling great, looking even better of course. Ask my bone marrow, and you may not get a response because the white blood cell department is on vacation. Not neutropenic, which is mahvelous, but not enough of the fighters to get chemo this week. It's not a big deal really, just means the marrow is taxed from, well, 10 months straight of chemo and needs some time to bounce back. You know what that means....off week city!!

So what to do? Well I did just get back from Boston, a great long weekend up there visiting friends and watching the Boston College Eagles casually notch another win. Not a huge deal, just matched last season's win total, like no biggie. I'm hearing warm things about the upcoming weather, looks like I'll have to hit the links. It's a struggle, but someone has to do it, you know? Might as well be Nicky Mo (third person, don't act like you don't absolutely love it).

If you need to reach me, I'll be in the middle of the fairway. Okay who am I kidding I'll be in the woods. Later all.


Tuesday, September 3, 2013

September 3, 2013

Back to school time, either today or next week for everyone. Except those that have graduated permanently in the spring...gross.

I guess I'd be more cut up about this being my first not back to school September if I was actually in school last semester. I don't know, something about the whole leaving school quite prematurely last year makes not going back now not a huge deal. Or maybe it's the fact that I don't have to start a real job and therefore don't miss the laziness that is "school". Or maybe I have cancer and none of these things really matter because I'm just focused on trying to feel halfway decent. OR maybe it's a huge deal and I just want to go back to my dorm room and football tailgates and "class" (sleeping through some) now please and thank you. I'll settle for a combination of all the above I guess.

I'm back from a hiatus, yes, as I was feeling quite miserable from chemo last week and had to rally to get myself prepared for the trip to Pittsburgh. What a trip - great seeing most of the roommates and watching the first place Pittsburgh Pirates (no big deal). It's a tough life being king, you know, heavy lies the crown and such, but the Pirates are doing it with style. Loving it. A huge thank you to all those involved in making it an amazing experience. In parting, a photograph - later everyone.


Sunday, August 25, 2013

August 25, 2013

Everyone: huge news in between blog posts - Bigfoot got a year older. Ew ew ew ew ew. She celebrated by knitting in a rocking chair, cleaning her dentures, and re-watching her most recent television spots. Good for her.

Tough week in the chemo world. These pills are just gross, totally mangle the stomach to no end. However, that's the halfway mark with the pills. Yes, it's true, the pills are half over. After this week, maintenance chemo will be half over. Astounding. Ready to put this baby in the books.

Also, while I was away, my partner in crime "El Gato Malo" (aka Old Man Wrinkle's automobile) crossed with 300,000 mile mark. Much to my chagrin, photographic evidence of the event was not obtained and therefore lost forever. These are the saddest of times. He still runs strong, however, crushing all mile barriers in his way. Stud car.

Hoping for some nice weather today (so far, so good), should be one of my last possible pool days here at the compound. Back to the chemo grind tomorrow...and Pittsburgh in less than a week. Let's go Pirates baby. Later everyone!

Wednesday, August 21, 2013

August 21, 2013

So I really enjoy driving, and I really enjoy hitting a golf ball. The great irony here is that I hate driving a golf ball. I've gotta figure that out relatively soon.

You know what else I've gotta figure out? Unpacking. I'm so not into it right now. I just feel like maybe it'll get itself done somehow...but it's just...not. Also, I haven't golfed in weeks. Weeks, I say. You'd think I was working hard on something else well HA! You'd be incorrect. Unfortunately. Perhaps it's time to reassess my priorities to keep the mind sharp through the fall. Keyword there: perhaps.

It's good to be home, but I of course miss Mickey and Minnie Mouse...those savages. Get to stay in the happiest place on Earth forever. Sharing is caring, rodents, didn't anyone ever teach you that? Bottom line you and I both know Mickey's still holding a grudge over originally being named Mortimer. Tough. Name.

Am I absolutely tearing up the lower Hudson Valley with the dirty blond spiked out hairdo? I know silly question. You know I am. Dirty blonde with needles protruding from the chest is about to be all the rage. Trendsetter extraordinaire. Don't hurt your neck trying to sneak a peek at my style when I roll by - if you kindly email I'll send a sample modelling photo.

Catch up with you all again soon. Hasta luego mundo.

Sunday, August 18, 2013

August 18, 2013

So it looks like it went the way of silence from the blogger for the past week.

In essence, that's how you could tell I was busy having a great time I suppose? In case it's still up in the air for you - it was a great time, of course. Disney's that "happiest place on Earth" for a reason, and you pick up an appreciation for something new every time you go. Past times it's been the intricacy with which Disney is planned and operated, from the detail of Main Street U.S.A. to the hidden "cast member" (remember, it's all one big show) entrances and exits. This time it was how each cast member went about their particular role with enthusiasm in order to make every visitor's time memorable. You can easily see how this has a profound effect on the younger ones. Although we may not think of it as the time is there, because life is short and the window of maximal effect Disney can have on a child in my estimation is somewhere from 4-8, I believe it's one of the most incredible experiences a parent can offer a young child. Of course there are many roadblocks to making the trip, namely financial and time constraints, but with proper allocation and planning, this is a trip that is very much worth it.

Moving on to big boy things, emphasis on big (but the food was so good...). The normal schedule is 2 weeks of chemo, one week off, repeat. Thanks to this trip I took two weeks off - doctors promoted it, have stated it doesn't change the efficacy of the drugs, etc., so I said why not. Astoundingly clutch move. I'm almost thinking of recommending adopting this extra week off at the midway point of treatment into the regimen. There are of course 2 problems with that: 1) I'm not at the midway point, but I'm close (done with 5 cycles of 12) and 2) not everyone does 12 cycles. But maybe there are other patients like me, and maybe my recommendation can help them out a bit too. We'll see.

Now why is this extra week off so great? Well for one, and perhaps most obviously, it allows the body to recover and extra whole week. Bone marrow gets as much of a vacation as the brain, if you will. Another reason is the amount of energy I pick up as a result; last time I went in for counts I noticed an "L" missing (signifying "Low") - turns out it was next to the red blood cell count, which is now back in the normal range. (NORMAL ha! What a loaded word.) Throw on two more weeks since then, and I can only imagine what that level is at. Oh wait! I was able to walk around all of Disney World for seven days versus barely mustering the strength to get out of the living room chair. I think I know where it's at. Last, and perhaps most importantly, this extra week provides a bit of hope. It shows how I could be feeling post-chemo - and December's right around the corner folks, I know you've all started Christmas shopping for me already. No chemo + presents...gawgeous.

Until another time everybody.


Friday, August 9, 2013

August 9, 2013

The last picture was undeniably cool, trust me I know. Perfectly appropriate on all levels, down to the horse named "Economic Forecast" winning a race named after a finance and marketing major's graduation. Boom goes the dynamite.

Where have I been, you ask? Great question. Next question. Kidding, I'll fess up. Alrighty, so the past cycle of chemo wasn't as kind to me in that my stomach tended to be in knots more often than not during the two week stint. Unfortunately, it was tougher to deal with; fortunately, it's over! This past week I've been doing as much as I possibly can, as always, making the most of my off-week time. What does this entail? Well for one, a round of golf or two is literally a shoe-in. If your life depended on in and you had to guess one activity that Nicky Mo has probably done in the past 48 hours, you'd guarantee another sunrise with a response of "placed a parimutuel wager" and you'd toe the line with "played golf". So you're welcome for that cheat sheet, because we all know this life or death scenario is coming to a theater near you sometime soon.

Gotta say it really is a bit strange but when you've gone through it I guess the experience sticks with you: in November I couldn't walk standing straight up. Literally could not walk without looking like Quasimodico, the hunchback of Putnam. Now I play a round of golf, no problem - full swings despite the mediport and all. The science of medicine really is something, and the bounce-back-ability of the human body is even more impressive. I've been pumping poison through these veins for a solid eight months now, yet I stand (caught me I'm sitting but stand packs so much more of a punch, right?) here today feeling better than I've felt in about a year and a half. Amazing. It's also amazing that this is what's almost expected, I guess. Doctor Wexler said he was confident he could get me to remission from day 1 - it's staying here that's the challenge. So while the tumors are in my rearview I'm very aware they're trying to catch up with me, just the nature of this disease. But while they're trying that, I'm living to the fullest - 'tis the only way.

And with that, I bid thee adieu. Next stop, Orlando. Bringing some rodent repellant to the Magic Kingdom, no worries. Also, this could go one of two ways: either you won't hear from me until after I return or I'll be practically live-blogging my trip to Disney World. Time will tell. Later everyone!

Tuesday, August 6, 2013

August 6, 2013






How sick, right???? I'll be back from my hiatus in a little, just needed to finally get this picture out there because it's so sweet. Giddy up.

Saturday, July 27, 2013

July 27, 2013

Saturday....at the compound....I think it was the 27th of Julyyyy. Best Chicago rendition I got folks. Just appreciate it, okay?

What goes on, you ask? Cheeeeeemo week one almost in the books. Got delayed on my pill-taking adventure due to UPS's lack of concern for my pills arriving on time...okay it was partially my fault as well for not refilling them in time BUT come on I need my pills UPS let's get with it. As a result, I think the one day delay has wreaked a bit of havoc on my stomach for not being on its usual schedule.

Bah, say I. Merely one more week of the wonderful cheeming and I'm home-free for a solid TWO weeks. And then what? Well, what else would one have Nicky Mo do in his weeks off other than golf, visit Saratoga, and oh yeah kick Mickey's tail down in Orlando?? Can't think of anything else either. Oh wait, maybe eat everything in sight and blame it on the steroids. Boom.

To say I'm looking forward to the upcoming weeks off is, of course, a severe understatement; but it's nice to have it to look forward to though during this tougher chemo week. Hope everyone has a great weekend and a solid start to the week coming up.

I might be back later to post a little picture I found so stay tuned...

Monday, July 22, 2013

July 22, 2013

Saved my 150th post until now, because it's a big number for this year - 150th anniversary of Boston College and Saratoga, two of my favorite places in this life. So let's not have this post be a letdown, eh?

I'm sure you've all been dying to hear about my latest news. The rumors are true: my golf game is spectacular. Okay, it's not but I'm edging my way towards respectability. Now that I've given you that nugget of grade A news, I'll also divulge that I had an unbelievably enjoyable weekend at Saratoga. Okay I'll finally cut to the chase - the scans have come back clean. Giddy up. Remission, let's be friends.

Great fortune cookie I got recently to wrap this up: "Life is a verb." Live, everyone.

Wednesday, July 17, 2013

July 17, 2013

Back from the hiatus. The first week sans mutt has been undoubtedly tough, and this was of course expected. It's safe to say she made this house a home.

So we power on, into this nice non-chemo week. It's a bit hot but I'll be on the links. Gotta make the most of the summer and these weeks off, right? Only had 2 hole-in-ones at the Modico Country Club yesterday, I guess that's alright. You know, whatever.

Went in for some scans on Monday. Cranked through pretty much every type of scan available at Sloan, minus the bone scan. That one's apparently not as much fun as the PET, CT, and MRI - so I left it off my schedule of events. Hopefully all the results come back swell.

On to the golf course I go. Keep cool everybody.


Wednesday, July 10, 2013

July 10, 2013

A sad day arrived today, as the family said a tearful goodbye to its only blonde member - the four-legged bandit Katie aka "Kathryn Dog".

Now just about everyone who knows me, or has met me even, is well aware of how much this canine means to me and those of you who read this blog are most certainly in tune with such. Of course, heartbroken won't even begin to describe the sentiment. I've been questioned and even mocked due to my relationship with my Katie dog and that's all fine - but the bond that little mutt and I shared was for real and makes it even tougher to see her go.

She lived a long, full life in which she was more than loved - this I'm most grateful for. Before leaving for college, Mom asked what I would want done if something happened while I was away: a call, text, etc. I knew no answer was needed because she'd still be around when I graduated, and of course she was, tail wagging dragging her butt side to side with it at the door when we arrived back from Boston. Undoubtedly, the powers that be kept her around to help us all through the darkest days this past year. Help she did, and then some.

About two days ago, the tail stopped wagging. Things were deteriorating fast, and we knew the time was near. She leaves us with memories we'll never forget and a legacy that remains unrivaled.

I'll leave you with some of my favorite Katie pictures.









                                               Rest In Peace Katie          4/12/99-7/10/13

Sunday, July 7, 2013

July 7, 2013

Greeeeeetings all.

What a 4th. America at its finest: burgers, dogs, pool, sun, and good music. Can't be beat. Needless to say I was undefeated on the day in all sporting events; my deepest condolences to my opponents (you know who you are, I'm sure you're still licking your wounds so I won't call you out on the blog - you're welcome).

Made it through the first week of chemo yet again - the correlated stomach unease continues yet we cope, as best one can. In fact, both Katie and I have been changing our diets a bit in order to improve our stomach situations. Katie's taken a liking to burgers, but fittingly has an issue eating a meal known as a "dog". Speaking of which, we had Chinese food last night (come on it was funny...Katie's giving me a face...moving on).

So I'll be chillin' here with my Katie dog, perhaps by the pool a bit, on this hot and humid July day. A little iced tea and TV - life is good. Later everyone.

Wednesday, July 3, 2013

July 3, 2013

Here we go: the Fourth of July. Every true American patriot's favorite day of the year.

How will I celebrate you ask? Well what better way than to grill out, bet horses, Kan Jam, play a round at Modico Country Club, and maybe even get some swimming and pool basketball in (yes, I've made arrangements to get the needle out a day early and back in for chemo Friday. The 4th is that important.).

Got a nice set of golf clubs delivered - what a deal I got on them too, over 50% off! Steal city baby! Out with the starter set, in with the suave set. Can't be stopped. Won't be stopped. I'm practically a scratch golfer now - who are we kidding my handicap is astronomical but still only one way to get better...play more. And that I shall do.

Don't look now boys and girls, but my Pirates are playing a little ball. It's barely the halfway point but listen - I'm still excited. Great pitching. What would you Yankees and Mets fans know about that? (I'll grant you Harvey...but no one else.) Let's go Bucs.

Off to plan my next move...Disney World trip. Happiest place on Earth. Fact. Later everyone!

Monday, July 1, 2013

July 1, 2013

Did ya miss me? Dumb question. Let's try this again - how much did you miss me?

What a week off. Enjoyability at its fullest extent. This standard midsummer thunderstorm pattern really put a damper on my golf outing game; nevertheless, as always it was a superb week off. Of course, once you start feeling like a normal human (i.e. your saliva tastes normal, you don't walk around with a needle, and your energy level is high), it's time to get back into the clinic and start up another round. It's tough to bring yourself to go back at this point, but not nearly as bad as the high dose chemo treatments. Now I fight the occasional bout with nausea and gross saliva. Before it felt like I fought to walk, eat, and breathe. Progress is crucial here, folks; and we have progress.

Had a surprise party on Saturday at none other than Belmont Park. Could there be a more appropriate venue for a graduation party for Nicky Mo? I think it's pretty obvious the answer is no. I smelled something fishy going to Belmont in a suit but the guise was good enough that I was surprised. Well done to all participants for keeping the secret on the down low. Attendees came from all over the Eastern seaboard for the event - to all those reading, thanks again for coming. For all those that couldn't make it, I'm sure I'll see you soon somehow. For all those I've never met...........hey, maybe meet you sometime.

Looking forward to the Fourth of July, probably my second favorite holiday to Christmas. Gotta celebrate America, the Declaration and Constitution, and essentially freedom and capitalism - nothing better. Red, white and blue, all day. Picture evidence from last year so you know my passion is real. Later world.




Wednesday, June 26, 2013

June 26, 2013


Oh, hello there. (Bob Ross voice)

It has been a while since I've posted I'm truly sorry. Once that needle comes out I'm worse than a Mexican jumping bean - all over the place and can't be stopped.

I've actually been thinking about exactly that recently: back in November and December, I found myself questioning if life ever would be the same. Of course in many ways it most certainly will not, but I specifically thought about the physical aspect of what was going on. Before all the symptoms hampered me, I would consider myself to be a pretty active guy, trying to participate in a variety of sports. Then after the surgeries, I walked whatever short distance I could hunched over - a far cry from racquetball or squash days. It's unbelievable how far I've come and hopefully I can continue to progress towards full health. Maybe I enjoy getting out and golfing so much because it brings me back to before everything happened medically. Or perhaps I enjoy it just because I physically can do it - something that shouldn't be taken for granted.

That all being said, this heat wave is seriously cramping my style. Like legitimately a month ago it was a high of 50 here. I remember it vividly. Insane weather.


So what else is new? Nothing! I'm boring I told you. Just trying to plan out the rest of my summer now that I'm starting to see how I feel at certain points of each chemo cycle. So many things to make sure I do and see when I can. Which leads to another point - there really are some great people out there. Thank you to all of you; the amount of love, support and continuous generosity that has been shown time and time again to my family and me is simply unreal. It, of course, does not go unnoticed, ever.

Since the heat is unbearable...WiiGolf today. I'll update with a high score soon.....shooting for that -18 still. Later everyone.

Friday, June 21, 2013

June 21, 2013

What's up people?

Been a while, I know I know but hear me out. I was going to write Wednesday, then I watched that hockey game until too late...then last night, but then I watched that basketball game until too late. Bottom line here? We have much to discuss. Let's get to the discussion.

Everyone, rejoice! The farce that is the NBA is finally over for months and we don't have to watch a game of so-called "basketball" for another nice long string of months. Next.

This hockey series is intense. Even though I really don't find myself pulling for one team over the other at this point, game 4 was easily the most entertaining game of the NHL playoffs this year. No doubt. Gotta love the puck game. And now that we have HDTV and you can actually see the puck floating across your screen (minus the little blue tail that Bigfoot loved so much...gross), it's that much better. Next.

Anyone with two eyes and a pulse could see that Miss USA was a two horse race between Illinois and Alabama. From my estimation, this should've clearly been a "Roll Tide" scenario; however, one always has to be wary of pace with match races. Burn each other out in the early going and some competitor with no business even being there will sneak up and snare the victory. Those Nutmeggers are a sly group I tell you - congrats to Miss Connecticut. Miss 'Bama, call me. Next.

Shot 18-under at Modico Country Club...no big deal. Not on WiiGolf yet - that's coming though, I can smell it. At least that's what I think I smell. Hope that's it.

Oh you guys wondering how chemo is going? Boring. Just plodding along here...last day of cycle 3 is at hand. Let's go. Needle out...watch out. Later world.


Sunday, June 16, 2013

June 16, 2013

Happy Father's Day to all those padres out there!

A nice, quiet weekend here in between chemo weeks. So that brings us to 2.5 rounds down, many more to go, but nevertheless counting DOWN right??

Made it through the first week relatively unscathed. Dynamite. The taste in the mouth is there and being combated, as always, with different and wonderfully innovative ways! A.k.a. not innovative at all...gum, drinking something, or eating basically all day. This could be bad news, as this would normally not work for people, most of whom are likely concerned with their appearance or looks. However this is simply irrelevant news, because I am merely concerned with living and not vomiting from the gross taste chemo brings about - so ha, my newly minted spare tire laughs at you.

Hopefully I'll be a feeling a little better this next week and will be able to move about a bit rather than just marinating inside all week. Quietly confident that will happen. But as for now, well, I've got some Miss USA competition to be watching. Laterrrrr

Thursday, June 13, 2013

June 13, 2013

Through 3 full days of cheeming out; two more to go in week one. Nice progress thus far, hopefully we can keep it going.

Been seeing what I can do with this needle in; so far, swinging a golf club has proved to be not too bad but not exactly easy, tossing a baseball not so much, driving is good, and messing with Katie is (of course) excellent. Walked in from hitting some practice golf balls yesterday and Katie was so passed out that when she finally heard me and looked up, her entire face was mushed from laying on it. The dog is great entertainment; I'll give her that any day.

Was looking forward to watching some golf on these cruddy days - of course the US Open is in Philly and getting hit by the same storm, though. Tough break. WiiGolf it is, kicking Bigfoot's butt everyday. Though I gotta give her credit, she knows how to put backspin on the ball and I most certainly don't. Impressive skills, but Katie's not impressed.


Just living the dream here folks. Getting after it, all day everyday. Into the weekend we ride.

Monday, June 10, 2013

June 10, 2013

Greetings Earthlings.

So what did we think of the Belmont Stakes? Kinda lame right? Maybe only because I didn't win any cash on the race but nevertheless. I did have some serious rooting interests in the preceding races, including the day before in the Brooklyn Handicap (essentially the Belmont Stakes for horses 4 years old and older), so that made for an exciting weekend of racing. Quite possibly nothing I enjoy more than such.

In and out of Sloan today like the place is riddled with the plague. Which it kind of is, in a way, sorta - correct? It's great getting out of there ASAP - and I think the pharmacy there knows that's my gig. I first get a finger stick to get my blood counts (yes a CBC merely from a prick of the finger), meet the team to discuss the blood counts and whether or not they're good enough to begin the next chemo cycle, and if they are I head back to the day hospital - if not, I head home. Extremely luckily, I haven't experienced the latter - and I feel like that's definitely been to my benefit in terms of treatment and beating this little nuisance though it is certainly physically demanding. I say this because the entire process from finger stick to chemo being ready to go took a grand total of maybe 30 minutes, which is simply unheard of. Talk about a small victory right there. Couple that with getting my main nurse to throw a little needle action in the mediport and get it working perfectly again, and we have what shapes up to a great day in the life of a cancer patient. It's the little things.

And so we start the next two week cycle. Getting after it. Later world.

Friday, June 7, 2013

June 7, 2013

Sorry for the delay in blogging; when the needle's away the Nicky Mo will play. Am I right?

We caught some really nice weather days here, so I had to take full advantage of them. Spent one down in the Bronx watching the pinstripes and another out on the links. Getting more and more used to swinging with this mediport, which is cool I guess. Then again, hopefully one day I'll have to get used to swinging without the mediport...riiiiight?

Which brings me back to my recent recollection of acquiring the aforementioned mediport on a gloomy November day (actually unsure if it was even gloomy, or what day it really was, or anything except that I woke up after surgery which is real good news). One second I'm hanging around getting ready for a little casual surgery action, the next I'm coming to and have a solid bump above my left pectoral muscle (or lack thereof but they tell me there's supposedly a muscle there) with needles stuck in and tubes running in and out of it. I was told that they'd possibly put in a temporary port (not even sure what that means) but it was pretty interesting waking up and looking like something straight out of Alien vs. Predator, (gotta be from Bigfoot's side of the family.......just kidding), with the tubes pumping whatever into my system. Great times. I'm sure you can all imagine how comforting it is to pass out going into surgery at the oasis that is Sloan Kettering and waking up with tubes running into you - like oh great what happened now? I lucked out and it was all good news - including news that it wasn't a temporary mediport but a normal one (I guess).

And yes, though we have had our bumps in the road, Meddie Port and I have been bestest of friends since. She holds a special place (directly) in my heart. Later world.

Monday, June 3, 2013

June 3, 2013

What's up everyone?

Here we are, starting up the off week from chemo. Feels like it's been a while since we've been so free and needleless. Taking advantage of every single minute of it.

What's new around the compound you ask? Well the Modico Country Club is really coming together. The course is a bit soggy due to recent weather conditions, but the peripheral landscaping is really filling in. Better hit those fairways; the rough is unforgiving. We have a new resident, a turtle moseying around the course. This thing is like Houdini - I've never seen a turtle move so fast. Then again, I haven't seen it move as of yet, technically. Everytime I look for it, it's in a different location, and no where near where it just was. This turtle has wings I tell you. Wings. Needless to say, Katie was unimpressed (as she snores in our faces).

Guess I'll hit the hay early tonight, get up nice and early and get blood taken down at Sloany Ketts (a check up), and get some errands done tomorrow. This whole cruising down to Sloan for just a quick CBC is a bit lame, especially at 7 AM, but ya gotta do what you gotta do. Speaking of, I gotta get my you-know-what in gear and get some stuff done around here while I can...then hit the links later in the week. Priorities.

Later everyone.

Friday, May 31, 2013

May 31, 2013

Greetings readers, greeeeeetings.

Excellent news: Bigfoot has crushed the surgery scene with relative ease. Making me look like a real wuss. I'm not exactly digging it but like good for her, whatever, you guys can follow her blog if you're so impressed alright?

Wasn't it just like 55 degrees and cloudy out? Suddenly 90 and humid as could be...gross. How is one supposed to chip around the compound in these adverse conditions? No thanks. Pass. Time to fire up the WiiGolf and get her nice and ready for these unseasonably disgusting days. Going for the 18 under record through 18 holes...I'll keep you all updated on this progress.

I've found myself really looking ahead to future events and making them goals to get to. First was graduation, which was achieved quite casually (what mumps outbreak pshhhh). Now it appears that the next couple of goals are the Belmont Stakes, weekends at Saratoga Race Course, and perhaps a trip out to see my beloved Pittsburgh Pirates. Let's make it happen.

Chemo? Shmemo. So over it. One more session tomorrow and a nice week off to follow. Getting after it. Get those summer plans together everyone; it's gonna be a great one.

Monday, May 27, 2013

May 27, 2013

A Memorial Day full of remembrance of those who protected and continue to fight for our freedom to you all.

Keep calm and chemo on. That's the spirit. Feels like I just got the needle out from week one of chemo, but then again I guess I did - it was only Saturday morning. Back down tomorrow for a quick stab and cheem session. No big deal, all fun and games in the long run right?

Bigfoot's heading in for a little procedure as well tomorrow, so thoughts and prayers for her speedy recovery are much, much appreciated. Nothing like a family outing down in New York City, right?! But I guess the East Side hospitals aren't exactly the most desirable spot for such. At least the food isn't too bad? I dunno.

Looking forward to crushing this week of chemo, recovering, and prepping myself for the Belmont Stakes. Nothing like thoroughbreds in New York, whether it be in the backyard at Belmont or up at the spa at Saratoga. Plus, nothing like having a little gambling interest every now and then to spice things up.

Have a great week, all.


Friday, May 24, 2013

May 24, 2013

Just powering through days of chemo here. Slowly but surely. Needle out tomorrow, then living the needleless dream for a couple of days before popping a new one back in for the next week of chemo. Standard protocol.

This whole taking the oral chemo at night scheme is quite clutch so far. Hope it continues; instead of the double up of chemo drugs during the day, taking the pills at night allows for the ability to sleep through the possible side effects it may bring. Though it's sometimes not so much fun to wake up dry-heaving at about 7 or 8 AM for most of you out there, it's not too bad for me. In fact, I'll take it over the other possible side effects.

Calculated Katie's official age today, thanks to the BBC, and UK and US vet services - 90. Old broad. Explains her sassiness and lethargy recently (as she snores in front of me...wait now a groan and roll). She got shot up with the juice today. I'll expect a couple of laps around the compound out of her tomorrow.

Now to get my you-know what back in gear after my little graduation honeymoon period...work to do, thank you notes to send, emails to respond to, and books to write (okay maybe not the last...but maybe...whoa). Later everyone!



Tuesday, May 21, 2013

May 21, 2013

That's right I did it. You bet your bottom dollar. College graduate - can't stop, won't stop, like a boss.

Astounding time up in Chestnut Hill for the day (of graduation). To my surprise, the keynote speaker wasn't too bad - nailing a good message up until he called us "the Obama generation". Kinda lost me after that, but I still managed to take some good points away from his address. One of many highlights may have been the CSOM (business school) dean instructing the class to "sober up and stay vertical" prior to processing down to Alumni Stadium. Classic Boston College.

We were a little fearful that the weather forecast of scattered showers/thunderstorms may come to fruition and leave us drenched. This was not the case, luckily. We were still drenched though, in sweat. Believe it or not I'd rather that scenario. Plus since there was no rain event we didn't have the constraint of rain tickets, and all that wanted to attend got to attend the diploma ceremony. It all worked out!

I'll take this time to point out that yes, I graduated BC essentially from a hospital bed at Sloan Kettering. However, much to your surprise I'm sure, given the obvious nature of the fact that I am indeed Batman/Superman/The 8th Wonder of the World, I most certainly did not accomplish this on my own - not by a longshot. My parents, the administrators at BC (Dean Keeley and Sara), and my professors (Professor Sannella, Doctor Spinello, and Monsignor Bergin) have to at least have the majority of responsibility for my graduation between them. I could not be more thankful for all their love and support throughout this and all semesters I've been involved with them. There was not doubt before this in my mind that Boston College is the greatest school in the world, but after this, I simply couldn't imagine living a life without those three and a half years I was lucky enough to have on the Heights.

Furthering that sentiment, a big congratulations to all those other Boston College Class of 2013 grads. We nailed it, with relative ease no doubt. To all my friends, who were always there for me even before I had to leave, though we may not live within feet of each other anymore we will undoubtedly remain with each other forever in one way or another. To the 30 Mod, you valiant group of studs you (including Thomas, the wanna-be Nicky Mo replacement), it has been an honor to call you gentlemen roommates and fellow Modmembers. Since I plan on being a stud for years to come, we shall reunite many times, and of course as a Modular at our 5 year reunion.

I'll leave you all with a little photo evidence of the aforementioned event. Take care everyone.


Thursday, May 16, 2013

May 16, 2013

What a gorgeous day. So nice I had to get out and hit some fairways....well attempt to at least. I hit a couple, on my way to a solid 112. Whatever. Blaming it on the mediport.

Preakness 2013 just around the corner. Will Orb do it again? To be honest, my money will be placed elsewhere. However, that's mostly because he offers little to no value as a betting interest at 1-1 or lower. We'll see how it all plays out, but of course I'd love to see a Triple Crown winner. So here's to hoping he wins.

Also, it's official: though I'd be attending graduation regardless, we were all a little unsure of whether or not I'd actually be graduating - but I am. Made moves, finished the work required, and gettin' that paper. Cha-ching. Employers literally can't stop sending me job offers; it's gross.

Also, good news: I think I'm back on Katie's good side. For a while there she was a bit annoyed with me, mainly due to my role as her personal groomer, giving her baths. As you can imagine, Katie enjoys baths just about as much as she enjoys the vacuum...maybe even less. Nothing a few treats and a cup or two of food can't fix, eh? Great broad.

Have a great start of the weekend everyone. Catch ya later.

Wednesday, May 15, 2013

May 15, 2013

Delayed this blog post a bit to ensure accuracy of information coming in. Would hate to give anyone false hope out there, you know? Good news - Nicky Mo is going to Commencement. After discussions amongst the entire team down at Sloan, I've been told it's a risk worth taking - just be ultra-careful, Purell like you have OCD, grab that diploma and skedaddle. I can work with that.

For those curious, the Modico Country Club is freshly manicured. Yes, my game tailed off with the jungle-like fairway conditions earlier this week. I've bounced back to form though, naturally. Can't be stopped. Except by a some trees on a few holes. They've been known to cramp my style.

Status quo on all other fronts. Feeling great in the middle of this second week off from chemo. Chilling out with Katie, getting out and cruising around, and eating like a champ much to the docs' delight. Gotta get fat to battle the chemo apparently...I can dig it, I guess. Now I'm getting hungry, thinking 5 Guys for lunch. Yeah, that sounds good. Later everyone.

Saturday, May 11, 2013

May 11, 2013

The mumps. So lame. Docs decided it wasn't a good idea for me to head up to school for Senior Week festivities due to a recent outbreak of the mumps on campus. What are the chances? The mumps! Bleh. Graduation still seems to be up in the air. Doc Wex will make the call sometime next week to see if it's even possible for me to sneak up there for just the commencement ceremony. We'll see.

What else is new? Absolutely, positively nada. Nasty weather has shut down the course at the Modico Country Club, which is tragic. Can't even pitch and chip around the compound with this rain. Although I'll have to have a chat with the head groundskeeper, the fairways are getting a bit unruly with the length of the grass...barely even playable at this point.

Katie's straight chillin' like a villain for all those curious. Snoring in my face regularly; highly standard. Happy Mothers' Day to all you mothers out there. Catch ya later.

Wednesday, May 8, 2013

May 8, 2013

Just realized now it's been like forever since I've blogged out. My bad homeslices.

NHL playoffs in full swing. You know my tushion has been planted in front of this beaut of a television watching the proceedings. It's just the right thing to do, though it's real tough to stomach the fact that it lasts until early- to mid-June or so until the Stanley Cup is awarded. Seems so long/drawn out. But given the fact that we were shorted half the season with that whole lockout gig, I'll take it.

Life is so boring without chemo, I simply don't know how you guys do it. Like you guys actually have energy to go out and work and do stuff? What's that like? Sounds gross. Although on a bright note I've had a pretty good energy level lately, moving back into the double digits with my hemoglobin levels as of Monday. Watch out world, I'm feeling some kind of physical endurance event just around the corner...or maybe just graduation. Maybe that will be an endurance event of sorts though...

Let's keep it going with these Rangers, and though they were necessary, hopefully the rain showers have hit the road. Until later.

Sunday, May 5, 2013

May 5, 2013

Cinco de Mayo, and the Derby Hangover.

If times were different I believe I'd currently (yes, 11 AM) be casually sipping some variety of Corona to toast the remembrance of the Battle of Puebla. Don't really know what it's all about, but they say it should be toasted and, well, therefore toast it we shall.

The Derby Hangover. Yes. The best horse won, which really can't always be said when it comes to the running of the Kentucky Derby. But for a fan of the sport that follows it much, much more than just the 5 weeks that span the Triple Crown, it was awesome to see racing royalty finally get a winner. Unfortunately, I tried to beat the favorite with Normandy Invasion, a respectable 4th, but think his jockey moved a bit too early. On to the Preakness (the first time in 3 years I won't be in attendance...sigh).

Finally done with the two week chemo. Felt like forever, but I really feel that was because I had to be down there everyday for the past two weeks just to see how it went. Now that it went well, with only some nausea, it looks like I can do 8/10 days from home - with Mondays being administered at the hospital. That's a real nice deal. Hopefully it all works out.

Hope everyone has a nice, relaxing weekend...catch you during the week.


Thursday, May 2, 2013

May 2, 2013

Sweet day. Started out a bit slow, I think I'm getting so stealth with how I slink into the dark corner of the recliner section down at Sloany Ketts that sometimes they forget I've checked in at the front desk. Case in point today, when I got the sideways look from a nurse who just so happened to walk back into my domain and asked how long I'd been there. It was a solid hour, but I was so caught up in re-reading The Count of Monte Cristo that I lost track of time. Oops, kind of, I guess, in a way. I don't know maybe I wasn't in a rush to get chemo or something cut a brother some slack.

Just witnessed Largefoot use a harness to help Katie get her creaky old bones up the stairs to bed....pathetic yet hilarious. The things we do for our pets...but honestly I feel like this is the tip of the iceberg in terms of things we'd be willing to do for the wondermutt. Perhaps one of the next steps will be some sort of breath mints, holyyyyyyyyyyy fish breath.

Another gorgeous day, absolutely necessary to get out and see some local high school baseball, grab some sun, listen to a little country music, and cruise around town. One more day of chemo, tomorrow morning, for this cycle - then the needle comes out and all bets are off. This week has been much better than even last week, with the chemo not really affecting me much even in the way of fatigue. The taste in the mouth lingers, sure, but honestly it's quite manageable in the big scheme of things. The trick will be to find some compound that cures both my taste issue and Katie's breath issue...scientists are currently hard at work looking for it.

People have been talking soooo derby to me lately. Kentucky Oaks tomorrow, Derby on Saturday. I am such a child for these days, just really exciting racing. Hope everyone gets a chance to catch 'em, and good luck if you bet. Talk to you later everyone.

Tuesday, April 30, 2013

April 30, 2013

I walk into the A&P to grab the old man a six-pack of brews, and also to see if they'll question whether or not it's actually my license, and I really believe the lady thought I was handing her a fake ID. Just smirked at me. Nevertheless got the booze SCORE. Then again she couldn't deny the matching hospital bracelet. So ha.

Chemo-ing out like it's nobody's business. The taste in the mouth and resulting nausea seems to be from the IV drip version of the med that I'm getting, so looks like I'm in for two weeks of three of that fun until about 2014. Disappointing. Whatever, I choose life soooo I'll just deal with it.

Most importantly: it's Kentucky Derby week. And honestly who knows which is the better race this year, the Derby or the Oaks? One thing is for sure: a great two days of racing. My favorite kind of weekend. Right after a two week stretch of cheeming out. Totally what the doctor ordered.

Hope everyone gets out and puts at least a $2 wager on one of the ponies this fine first Saturday in May. Make it interesting, you know? Have a little skin in the game for the most exciting two minutes in sports. Just a suggestion, though...later all!


Sunday, April 28, 2013

April 28, 2013

How does one follow up a blog like the last? Serious concerns here, folks.

Well it was a real nice weekend weather-wise, but until about two hours ago I really wasn't feeling too well. Guess the new chemos are less than friendly with the stomach, and have given me a lingering nasty taste in the mouth and some slight nausea. But hey! Who really cares if it's keeping the tumors away?

Even with the nice weather I go outside and feel somewhat cold. It's amazing how I used to abide by the "over 50 = shorts weather" rule...it was 70 today and I was rocking a long-sleeve shirt and sweats. These red blood cells are gonna have to get their little act together for the summer so I can hit the links (with needles in chest just to be a complete badass and show up all the old geezers on the course) or we're gonna have problems.

Hope everyone had a great weekend and has a great week coming up. Enjoy every minute of it.

Friday, April 26, 2013

April 26, 2013

It's been a long, tough ride of course. You ride around connected to things, tubing, backpacks - needles rest in your chest connected to a catheter that leads directly into your heart to pump poisons into your body in order to remove disease. You go through it because you dream of better days. You go through it because you remember how good life was, is, and can possibly be in the future. You go through it because you really have no other choice. You dream of the day you hear your doctor utter the word "remission".

Today is that day. MRI this morning revealed that the previously worrisome spot on the PET scan last Thursday is still to be monitored but not showing up as a tumor. In essence, radiographically, I am a tumorless human being. Sure, the one near my tailbone will never physically go away, but hopefully it will remain, like the others, completely inactive and dead. In other words, hopefully I'll stay in remission. This is the first of many more steps to go, but sure does it feel like a big one.

I'll continue to receive the maintenance chemotherapy in order to increase the likelihood of the disease not coming back. My hair will grow back, and I'll get some of my life back together, God willing. Things will start to unwind and we'll all just remember this as a dark, dark year. Can't say it hasn't been some experience, regardless of the outcome, though. Certainly a life changing experience - hope I am able to live with this new outlook for many more years.

Later everyone.