The blogging is slowing down. If you're concerned it's because I'm not feeling up to blogging, well, you'd be right. I've been trying to figure out what could possibly be putting me through all this pain, because I simply can't believe the disease would progress this rapidly throughout my body again. Scans tomorrow will show at least some of the story, I'm sure.
It has, indeed, been quite the struggle in the recent week or two. Overall soreness, odd pains, and the gloriously numb quarter of my mouth are making for some unbelievably fun times, as you could imagine! Waking up in the middle of the night, sweating or writhing, calling on my trusty helpers Bigfoot and Old Man Wrinkles to help a brother out with a hot water bottle or readjusting position on the bed to gain some comfort has become commonplace. Showers - highly optional. Naps - necessary. Sometimes these pain meds don't kick in right away and kinda linger in the system and I'll just get slammed by a delayed reaction and pass right out. Just woke up from one of those naps...it was sweet.
The pain meds mess with you something awful. Nature of the beast really. I'll pop some, nothing will happen, then maybe 15 minutes or oh, I don't know, 6 hours later I suddenly won't be able to text. Like at all. Forget about having a nice little conversation, I'm sure I sound like I'm as high as a kite when I hit that stage. Maybe I'll attempt to obtain video evidence.
Everything else remains in the holding pattern until we find out what these scans show tomorrow. Until then, I'll just be enjoying watching the snow fall. And fall and fall some more it shall...later everyone!
Thursday, February 13, 2014
Saturday, February 8, 2014
February 8, 2014
Now it's been a while. I'm slacking with the blogging, but to be fair it's mostly due to not feeling so great recently. Bear with me people!
Update time! So I finished radiation on Tuesday. All the spots from the last scans, minus the arms, have been taken care of via the rads...or so we hope. However, that certainly doesn't mean the pain just disappears. Ohhhhh no, though I wish it did. New pains have popped up, new areas of concern will be on the next scans, and we'll have to consider all the options at hand and start up something very soon.
At least I'm walking again, decently. A little better than a shuffle, to be sure. However, about a quarter of my mouth went completely numb over the past 3 days, leading to a nice emergency MRI last night down at Sloany Ketts to check for a tumor. Preliminarily (love this word) there's no tumor in my head...but we'll see what the final reading says. Steroids are miserable with their side effects, but still have to take them according to the docs down at MSKCC. I'm convinced they cause some pains that I've been getting. It's all so tough to rationalize and justify when every person handles every drug differently and the coincidence that I get pains right after taking the roids. We'll figure it out. Again, we'll find out what our plan of attack is early next week, after getting a new set of scans on Tuesday.
Otherwise, I've been up to nothing. TV watching, some college basketball action seemingly every night, and trying to get and stay comfortable for as long of stretches of time as possible. Heating pads and pain pills for the win.
Here's to comfort, recovery, and a better tomorrow!
Update time! So I finished radiation on Tuesday. All the spots from the last scans, minus the arms, have been taken care of via the rads...or so we hope. However, that certainly doesn't mean the pain just disappears. Ohhhhh no, though I wish it did. New pains have popped up, new areas of concern will be on the next scans, and we'll have to consider all the options at hand and start up something very soon.
At least I'm walking again, decently. A little better than a shuffle, to be sure. However, about a quarter of my mouth went completely numb over the past 3 days, leading to a nice emergency MRI last night down at Sloany Ketts to check for a tumor. Preliminarily (love this word) there's no tumor in my head...but we'll see what the final reading says. Steroids are miserable with their side effects, but still have to take them according to the docs down at MSKCC. I'm convinced they cause some pains that I've been getting. It's all so tough to rationalize and justify when every person handles every drug differently and the coincidence that I get pains right after taking the roids. We'll figure it out. Again, we'll find out what our plan of attack is early next week, after getting a new set of scans on Tuesday.
Otherwise, I've been up to nothing. TV watching, some college basketball action seemingly every night, and trying to get and stay comfortable for as long of stretches of time as possible. Heating pads and pain pills for the win.
Here's to comfort, recovery, and a better tomorrow!
Monday, February 3, 2014
February 3, 2014
Alright people. Peeeeeeople. That was the most miserable Super Bowl in the history of the game. No entertainment value, awful commercials, just terrrrrrible. You guys know I'm not a Negative Nancy, Pessimistic Patty, Debbie Downer, etc., but this was bad.
Was I pro-Seahawks? Easy to say yes now, but I actually was. If the Giants-Patriots Super Bowls taught us anything, it was that you gotta respect defense. Don't care how awesome a team's offense over an entire season is: when n=1, statistically speaking, anomalies can and will occur. This one game, with all its different factors, will most likely never fall into a statistical average. That's just how it goes, in my eyes at least.
That's enough about the NFL...and the strange season it was. Now we've got some puck to watch, and that includes the Olympics. Actually looking forward to the Olympics quite a bit - everyone knows I'm quite the patriot so I'll be "USA"-ing from the couch fiercely.
Guess we'll also update on the medical situation. Radiation should end tomorrow, which is swell. Almost off the steroids, which is necessary to get the immune system back into gear if we want to try pursuing immunological treatment options. I still lean that way, but the key is to find that chemo that will still cause tumor kill without just destroying my platelet and white blood cell count. We'll see if we can pull it off...still mulling the options. Until then, pain management is the goal.
Here's to good guidance from here and above on what the next step should be...to a better tomorrow, world!
Was I pro-Seahawks? Easy to say yes now, but I actually was. If the Giants-Patriots Super Bowls taught us anything, it was that you gotta respect defense. Don't care how awesome a team's offense over an entire season is: when n=1, statistically speaking, anomalies can and will occur. This one game, with all its different factors, will most likely never fall into a statistical average. That's just how it goes, in my eyes at least.
That's enough about the NFL...and the strange season it was. Now we've got some puck to watch, and that includes the Olympics. Actually looking forward to the Olympics quite a bit - everyone knows I'm quite the patriot so I'll be "USA"-ing from the couch fiercely.
Guess we'll also update on the medical situation. Radiation should end tomorrow, which is swell. Almost off the steroids, which is necessary to get the immune system back into gear if we want to try pursuing immunological treatment options. I still lean that way, but the key is to find that chemo that will still cause tumor kill without just destroying my platelet and white blood cell count. We'll see if we can pull it off...still mulling the options. Until then, pain management is the goal.
Here's to good guidance from here and above on what the next step should be...to a better tomorrow, world!
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